I now have a complete picture of all the sources. Let me compile the full, organized answer.
Sources of Health Information - Park's Textbook of Preventive and Social Medicine
The textbook states: "The lifeblood of a health information system is the routine health statistics. Information requirements will vary according to the administrative level at which planning is envisaged... These different contexts require different sources of information."
Park's lists the following sources:
1. Census
The census is taken at regular intervals (usually every 10 years). The UN defines it as the total process of collecting, compiling and publishing demographic, economic and social data pertaining at a specified time to all persons in a country or delimited territory.
- In India: first regular census in 1881, last held in March 2011; governed by the Census Act of 1948; directed by the Census Commissioner of India.
- Provides: total population count, age/sex distribution, social and economic characteristics, living conditions, income - all essential as a frame of reference for planning and research.
- Main drawback: full results are not available quickly - takes years to analyze.
2. Registration of Vital Events
A continuous system (unlike the intermittent census) that tracks births, deaths, fetal deaths, marriages, divorces, adoptions, etc.
- Governed in India by the Registration of Births and Deaths Act, 1969.
- India also operates the Sample Registration System (SRS) for states where civil registration is deficient - this provides estimates of birth rate, death rate, infant mortality rate, etc.
- Limitation: incomplete and inaccurate registration in many developing countries.
3. Mortality Statistics
Death (mortality) data is derived primarily from:
- Death certificates
- Vital registration systems
Cause-of-death data depends on the accuracy of the International Classification of Diseases (ICD) coding. Mortality data is the most universally available indicator and is useful for comparing health status across populations. In India, the Registrar General of India compiles this data.
4. Notification of Diseases
Diseases are required by law to be notified to health authorities. This system provides early warning of outbreaks and tracks disease trends.
- Lists of notifiable diseases vary by country and state.
- At the international level, cholera, plague, and yellow fever are notifiable to WHO under the International Health Regulations (IHR); others (malaria, rabies, influenza, etc.) are subject to international surveillance.
- Limitations: covers only a fraction of total sickness; significant under-reporting; atypical and subclinical cases are missed; accuracy depends on availability of lab facilities.
5. Hospital Records
In countries where registration is defective, hospital data constitutes a basic and primary source of disease information.
- Provides data on: geographic sources of patients, age/sex distribution of diseases, duration of stay, diagnosis distribution, cost of hospital care, bed-occupancy rates.
- Main drawbacks:
- Only the "tip of the iceberg" - mild and subclinical cases not captured.
- Admission policy varies by hospital - highly selective.
- Population at risk (denominator) cannot be defined.
- Poor guide to estimating disease frequency in the community.
6. Disease Registers
A register requires a permanent record, follow-up of cases, and statistical tabulations on frequency and survival.
- Registers exist for: cancer, stroke, myocardial infarction, blindness, congenital defects, congenital rubella, tuberculosis, leprosy.
- Valuable for: duration of illness, case fatality, survival, natural history of chronic disease.
7. Record Linkage
The process of bringing together records relating to one individual (or family) originating from different times or places. It assembles a file of important health records for each individual - births, marriages, deaths, hospital admissions/discharges, sickness absence, prophylactic procedures, etc.
- Useful for: studying disease associations (which may have aetiological significance), twin studies, chronic disease epidemiology, family and genetic studies.
- Limitation: enormous volume of data; currently beyond the reach of many developing countries.
8. Epidemiological Surveillance
Special surveillance systems set up as part of national disease control programmes (malaria, tuberculosis, leprosy, filariasis, etc.) that report on new cases and control efforts (e.g., immunizations performed).
- Yields considerable morbidity and mortality data for specific diseases.
9. Other Health Service Records
Information found in records of:
- Hospital outpatient departments
- Primary Health Centres (PHCs) and subcentres
- Polyclinics
- Private practitioners
- School health services
- Occupational health services
- Maternal and child health (MCH) clinics
These are useful adjuncts but vary in completeness and standardization.
10. Health Surveys
Used to supplement deficiencies of routine records. Three broad types:
| Type | Purpose |
|---|
| (a) Evaluating health status | Community diagnosis - distribution of problems over time and space |
| (b) Investigating factors | Environment, occupation, income, aetiology, risk factors |
| (c) Administrative surveys | Use of health services, expenditure, evaluation of medical care |
Survey methods (classified by data collection method):
- Health interview (face-to-face) survey - measures perceived morbidity, disability, beliefs, attitudes; gives population-based data.
- Health examination survey - more valid for morbidity data; expensive, limited scale.
- Health records survey - cheapest but not population-based; reliability questionable.
- Mailed questionnaire survey - simpler, cheaper; high non-response rate.
Notable: the first methodological general health survey in India was carried out at Singur Health Centre by Lal and Seal in 1944-46.
Source: Park's Textbook of Preventive and Social Medicine, Chapter on Health Information and Statistics